Catalog Search Results
Author
Series
Friend zone volume 3
Language
English
Description
"Vanessa lives life on her own terms -- one day at a time, every day to its fullest. She can't afford to think about whether she has the same fatal genetic condition as her older sister. After all, she has way too much to do, traveling the globe and showing millions of YouTube followers the joy in seizing every moment. But lately, life has been anything but pure joy, and travel has come to an abrupt halt. After her younger step-sister drops off an...
Publisher
The Johns Hopkins University Press
Pub. Date
2013
Language
English
Description
The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it....
Author
Language
English
Formats
Description
Twelve-year-old Kate's idyllic life in Baton Rouge takes a drastic turn when a mysterious shoulder pain reveals she has Fibrodysplasia Ossificans Progressiva, a rare genetic disorders, challenging her to adapt with support from loved ones and a pen pal, Amie, who shares her experience with FOP
Series
Publisher
Gale, Cengage Learning
Pub. Date
[2016]
Language
English
Description
Provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand in language accessible to laypersons.
Author
Language
English
Formats
Description
Ian Brown's son, Walker, was born with a genetic mutation so rare that doctors call it an orphan syndrome: at most, three hundred people around the world live with it. At thirteen, Walker is still in diapers: he is globally delayed, he can't speak, and he has to wear cuffs on both arms so he won't constantly hit himself. He will require constant care for the rest of his life. The boy in the moon tells the story of one frail boy and the tiny constellation...
7) Mercies in disguise: a story of hope, a family's genetic destiny, and the science that rescued them
Author
Publisher
St. Martin's Press
Pub. Date
2017
Language
English
Description
"The phone rings. The doctor from California is on the line. "Are you ready Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested-at least, not now. But she had to find out. If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you'd inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever answer came your way? Or would...
Author
Series
Waters of time volume 2
Language
English
Formats
Description
"After the disappearance of her father and sister, Ellen Creighton wants nothing to do with the holy water they were seeking, even if it would cure her deadly genetic disease-until a friend helps her recognize its true power in this suspenseful, time-crossing romantic adventure"--
In the last stages of a genetic disease, Ellen Creighton has decided to live out her remaining days at the estate of her longtime friend Harrison Burlington. As a wheelchair-bound...
Author
Publisher
Bethany House, a division of Baker Publishing Group
Pub. Date
©2017
Language
English
Description
After a devastating heartbreak three years ago, genealogist and historical village owner Nora Bradford has decided that burying her nose in her work and her books is far safer than romance in the here and now. Unlike Nora, former Navy SEAL and Medal of Honor recipient John Lawson is a modern-day man, usually 100 percent focused on the present. But when he's diagnosed with an inherited condition, he's forced to dig into the secrets of his past and...
Author
Language
English
Description
"From award-winning, New York Times bestselling author and neuroscientist Lisa Genova comes a powerful new novel that does for Huntington's Disease what her debut Still Alice did for Alzheimer's. Joe O'Brien is a forty-four-year-old police officer from the Irish Catholic neighborhood of Charlestown, Massachusetts. A devoted husband, proud father of four children in their twenties, and respected officer, Joe begins experiencing bouts of disorganized...
Author
Publisher
Riverhead Books
Pub. Date
2023
Language
English
Description
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors...
12) Braced
Author
Accelerated Reader
IL: MG - BL: 4.1 - AR Pts: 9
Language
English
Description
When twelve-year-old Rachel learns that her scoliosis has worsened and she will need to wear a back brace to keep her spine straight, she is devastated; afraid that she will not be able to play soccer, and terrified that she will not be able to hide her condition from her friends and classmates--but her mother is determined to spare her the spinal fusion surgery that she herself had as a teenager
Publisher
Distributed by Warner Home Video
Pub. Date
[2010]
Language
English
Description
Clare has been in love with Henry her entire life. She believes they are destined to be together, even though she never knows when they will be separated: Henry is a time traveler, cursed with a rare genetic anomaly that causes him to live his life on a shifting timeline, skipping back and forth through his lifespan with no control. Despite the fact that Henry's travels force them apart with no warning, Clare desperately tries to build a life with...
14) Saving the Tasmanian devil: how science is helping the world's largest marsupial carnivore survive
Author
Accelerated Reader
IL: MG - BL: 7.9 - AR Pts: 2
Language
English
Formats
Description
"In this addition to the critically acclaimed Scientist in the Field series, Dorothy Patent follows the scientists trying to put a stop to a gruesome disease before it's too late. Tasmanian devils are dying at an alarming rate from a type of tumor that appears to be contagious. What scientists are learning while researching the Tasmanian devil has potential to affect all animals, and even humans, as they learn more about how to prevent and hopefully...
Author
Publisher
Penguin Press
Pub. Date
2020
Language
English
Description
"The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight she is attending standard public school classes. This is the story of her family's journey"--
Author
Publisher
Houghton Mifflin Harcourt
Pub. Date
[2020]
Accelerated Reader
IL: MG - BL: 6 - AR Pts: 9
Language
English
Description
"Normal. Who is to say what this word means? For Magda Newman, it was a goal. She wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments his friends took for granted. But Nathaniel's severe Treacher Collins syndrome -- a craniofacial condition -- meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? But...
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